Jan 19, 2017
With the upcoming inauguration of the 45th President of the United States, the country is preparing for big changes, especially when it comes to healthcare. The potential repeal of the Affordable Care Act threatens some provisions for chronic and rare disease patients. For example, the ACA prohibited insurance companies from setting lifetime caps on medical expenses …
Topics: News/ Research
Jan 17, 2017
FSR is proud to have partnered with the University of Pennsylvania and Penn Medicine to help share a new mobile app for sarcoidosis patients which allows patients to track their symptoms, disease activity and impact, and other quality of life measures, using their...Topics: Living with Sarcoidosis/ News/ Research
Jan 9, 2017
Steve McLeod, a sarc warrior, leader of Team Aussie, and supporter of FSR, was recently featured in the Courier Mail, a daily newspaper in his hometown of Brisbane, Australia. Steve has neurosarcoidosis; he has lost his hearing and is unable to maintain his balance...Topics: FSR Events/ Team KISS
