Jun 1, 2026
In May 2026, the FSR team came together in Orlando, Florida for the 2026 American Thoracic Society (ATS) International Conference. ATS is a major professional gathering that brings health care professionals, industry representatives, nonprofit organizations, and...Topics: Advocacy/ Awareness/ Clinician Engagement/ News/ Research
May 1, 2026
Sarcoidosis has deeply impacted my family. My late grandmother lived with the disease, and my mother has been courageously managing it for over 30 years. While it has brought challenges, it has also shown me what strength, love, and resilience truly look like....Topics: Awareness/ Patient Voices
Apr 20, 2026
The American Academy of Dermatology (AAD) 2026 Annual Meeting in Denver in March 2026 was an important moment for the sarcoidosis community, especially for people living with skin (cutaneous) sarcoidosis. This year’s meeting featured more than 275 sessions covering...Topics: Awareness/ News/ Research
Apr 16, 2026
“Ten years ago, I heard a word that would quietly change the course of my life: sarcoidosis. At the time, I had no idea how much that single word would teach me—about patience, uncertainty, suffering, resilience, and the deep importance of living mindfully in...Topics: Awareness/ Patient Voices
Apr 8, 2026
Often described as a “snowflake disease,” sarcoidosis can affect every patient differently, making it difficult to diagnose, treat, and even recognize. This April, the Foundation for Sarcoidosis Research (FSR) is leading Sarcoidosis Awareness Month with its 2026...Topics: Awareness
Jul 21, 2025
The Foundation for Sarcoidosis Research (FSR) is proud to celebrate a major milestone for the FSR Sarc Fighter Podcast, which has officially surpassed 100,000 downloads since its launch in 2020. Hosted by John Carlin, member of the FSR Board of Directors and...Topics: Awareness/ News/ Patient Voices
May 1, 2025
Sarcoidosis Awareness Month is a time for the community to rally together sharing stories, spreading awareness, and providing education about sarcoidosis to those all around the world. This year’s theme of #FacingSarcoidosisTogether truly captures the essence of...Topics: Awareness/ Research
Apr 8, 2025
My name is Scarlette Washlock, and I was diagnosed with sarcoidosis when I was 12 years old. I am honored that the Foundation for Sarcoidosis Research asked me to share my story. As I brainstormed what to write, I felt so fatigued that I had to sleep and try again the...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Mar 31, 2025
For Molly Flick, the loss of her mother, Dawn Heilman, was more than just the passing of a loved one—it was a call to action. In her search for a meaningful way to honor her mother’s memory, Molly discovered the Foundation for Sarcoidosis Research (FSR). What began as...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices/ Take Action/ Team KISS
Mar 25, 2025
When exposed to wildfires and during the clean up, consider the following precautions to protect your health. Stay Indoors: When possible, minimize exposure to outdoor air by staying indoors, particularly during peak smoke periods. Use air purifiers to improve indoor...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Other
