Jun 1, 2026
In May 2026, the FSR team came together in Orlando, Florida for the 2026 American Thoracic Society (ATS) International Conference. ATS is a major professional gathering that brings health care professionals, industry representatives, nonprofit organizations, and...Topics: Advocacy/ Awareness/ Clinician Engagement/ News/ Research
Feb 24, 2026
The Foundation for Sarcoidosis Research (FSR) has been named a 2025 RareVoice Awards recipient by EveryLife Foundation for Rare Diseases, earning national recognition for Federal Advocacy by a Patient or Organization. The award honors FSR’s leadership in securing a...Topics: Advocacy/ News
Jun 2, 2025
In May, the FSR team came together in San Francisco, California for the 2025 American Thoracic Society (ATS) International conference. ATS is one of our favorite events that takes place every year and brings together health care professionals, industry partners,...Topics: Advocacy/ Community Partners/ Research
May 20, 2025
In recognition of Clinical Trials Day, the Coalition to Transform Clinical Trial Engagement (CTCTE) proudly announces the launch of the Champions for Change – Paid Time Off (PTO) Initiative, a national effort to reduce job-related barriers to clinical trial...Topics: Advocacy/ Community Partners/ News/ Research
May 9, 2025
The Foundation for Sarcoidosis Research (FSR) is pleased to announce the appointment of four new members to its Board of Directors: John Mockovciak III, Joan Levy, PhD, John Carlin, and Molly Flick. “We are honored to welcome John, Joan, John, and Molly to the...Topics: Advocacy/ News
Apr 2, 2025
Foundation for Sarcoidosis Research Joins with Walgreens, Cedars-Sinai to Provide Foothill Unity with Free N95 Masks to Protect Residence Cleaning Up from the Recent Los Angeles Wildfires. As clean up continues from January’s devastating Los Angeles wildfires, the...Topics: Advocacy/ Community Partners/ News
Mar 25, 2025
When exposed to wildfires and during the clean up, consider the following precautions to protect your health. Stay Indoors: When possible, minimize exposure to outdoor air by staying indoors, particularly during peak smoke periods. Use air purifiers to improve indoor...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Other
Nov 18, 2024
In August of 2023, the Foundation for Sarcoidosis Research (FSR) submitted a Request for Opinion Letter on Clinical Trials and the Family and Medical Leave Act (FMLA) with the U.S. Department of Labor (DOL). On November 8, 2024, FSR received a letter of clarification...Topics: Advocacy/ Living with Sarcoidosis/ News/ Research
Oct 31, 2024
On October 28, 2024, the Foundation for Sarcoidosis Research (FSR) hosted a groundbreaking Externally Led Patient-Focused Drug Development (EL-PFDD) meeting on sarcoidosis with the U.S. Food and Drug Administration (FDA). This virtual event attracted nearly 350...Topics: Advocacy/ Awareness/ Patient Voices/ Take Action
May 20, 2024
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients, takes a bold step forward in addressing health disparities by announcing the launch of the...Topics: Advocacy/ Awareness/ Community Partners/ News/ Research
