Jul 14, 2026
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for those living with the disease, has announced a new partnership with Patient Advocate Foundation, the nation’s most...Topics: Awareness/ Living with Sarcoidosis/ News
Apr 8, 2025
My name is Scarlette Washlock, and I was diagnosed with sarcoidosis when I was 12 years old. I am honored that the Foundation for Sarcoidosis Research asked me to share my story. As I brainstormed what to write, I felt so fatigued that I had to sleep and try again the...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Mar 31, 2025
For Molly Flick, the loss of her mother, Dawn Heilman, was more than just the passing of a loved one—it was a call to action. In her search for a meaningful way to honor her mother’s memory, Molly discovered the Foundation for Sarcoidosis Research (FSR). What began as...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices/ Take Action/ Team KISS
Mar 25, 2025
When exposed to wildfires and during the clean up, consider the following precautions to protect your health. Stay Indoors: When possible, minimize exposure to outdoor air by staying indoors, particularly during peak smoke periods. Use air purifiers to improve indoor...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Other
Nov 18, 2024
In August of 2023, the Foundation for Sarcoidosis Research (FSR) submitted a Request for Opinion Letter on Clinical Trials and the Family and Medical Leave Act (FMLA) with the U.S. Department of Labor (DOL). On November 8, 2024, FSR received a letter of clarification...Topics: Advocacy/ Living with Sarcoidosis/ News/ Research
Oct 25, 2024
“I was diagnosed with Cutaneous Sarcoidosis in July of 2011. When I was diagnosed, I was alone and didn’t know what this disease was much less how to pronounce it correctly, which I’m still working on. Ha. After Googling Sarcoidosis, I was a tad bit scared; I...Topics: Living with Sarcoidosis/ Patient Voices
Sep 17, 2024
These last few weeks have been very rough on me. I feel as if I have been going through both a spiritual and existential crisis. Sarcoidosis has completely shifted and changed my life and how I view and live in this world. The word “silence” has been both...Topics: Living with Sarcoidosis/ Patient Voices
Jul 23, 2024
Before my heart disease journey began in Spring 2019, I was a passionate and dedicated educator and led a dynamic and fulfilling life. I was very active and busy with work, church, and my beloved Sorority of Delta Sigma Sorority, Inc. I never had any health issues. I...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Jul 9, 2024
My journey with neurosarcoidosis began on May 5, 2013, when I woke up in the morning with the worst headache of my life, light sensitivity, and double vision. After an evaluation by a neuro-ophthalmologist, a negative MRI, a Lumbar Puncture (which relieved my...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Jun 19, 2024
Sarcoidosis is difficult to diagnose for a variety of reasons, Mary McGowan, CEO of the Foundation for Sarcoidosis Research, told Diagnostics World. For one, it is not limited to a single area or part of the body. “It’s a rare inflammatory disease that can impact...Topics: Living with Sarcoidosis/ News/ Research
