Category: Patient Voices
Couple’s 5K Grabs Local Media Attention
Perry and Melissa Enyedi are an Ontario couple hosting an independent K.I.S.S. walk in Brantford, ON this Saturday. While sarcoidosis is a rare disease, their family has had more than their fair share of experience with the disease- both Perry and Melissa’s...
Step by Step: A Patient’s Story
The first Wednesday in April is National Walking Day! Bob Owens used to be a first responder, where being in good physical shape is just part of the job. When he stopped working, Bob found it was exceedingly difficult to stay in shape. His weak lungs and chronic...
In Memory of PJ: Walking for a Cure
FSR supporter and Patient Ambassador Mary McGonagle is currently leading the way for Team K.I.S.S. virtual walks and fundraising efforts. Her walk in memory of her husband, PJ McGonagle, already has nearly 30 people registered, with more than two months until the walk...
Environmental Triggers: An Odyssey of Exposures
It was 1976 and Theresa Michelle— a newlywed working at the Department of Justice in Washington D.C.—was having trouble holding on to heavy pots and pans. She was soon diagnosed with rheumatoid arthritis, but couldn’t have imagined the two decades of health troubles...
Environmental Triggers: Growing Up in Rubbertown
FSR recently reached out to members of our online community to ask if they felt that poor air quality, industrial pollution, or any other environmental triggers have caused a flare up or even the development of their sarcoidosis. The post generated an overwhelming...
One Step at a Time
It isn’t easy staying fit when you have a chronic illness. Our conditions can be an incubator for excuses. We all have bad days, pain spikes and our disease affects our respiratory system and our joints. My doctors have told me I should NOT go to the gym or take yoga...