May 16, 2017
Gretchen Denney developed some strange symptoms around the time she was pregnant with her two children. After the birth of her first child, her daughter, Gretchen noticed an annoying and unexplained rash on her legs. A few years later, pregnant with her second child,...Topics: Living with Sarcoidosis/ Patient Voices
Apr 25, 2017
Firefighters and first responders seem to be at a higher risk of developing sarcoidosis. While this has been a theory by many over the years, like every other aspect of sarcoidosis, research was lacking. As a disease that commonly affects the lungs and shows a...Topics: Living with Sarcoidosis/ Patient Voices
Apr 17, 2017
U.S. Senate Democratic Leader Charles E. Schumer, with Kerry in the background Senator Debbie Stabenow (MI) FSR Patient Ambassador Kerry was in Washington, D.C. last month attending a press conference held by Senate Democrats. The press conference focused on pending...Topics: News/ Patient Voices
Apr 17, 2017
Perry and Melissa Enyedi are an Ontario couple hosting an independent K.I.S.S. walk in Brantford, ON this Saturday. While sarcoidosis is a rare disease, their family has had more than their fair share of experience with the disease- both Perry and Melissa’s...Topics: Patient Voices/ Team KISS
Apr 5, 2017
The first Wednesday in April is National Walking Day! Bob Owens used to be a first responder, where being in good physical shape is just part of the job. When he stopped working, Bob found it was exceedingly difficult to stay in shape. His weak lungs and chronic...Topics: Patient Voices
Feb 17, 2017
FSR supporter and Patient Ambassador Mary McGonagle is currently leading the way for Team K.I.S.S. virtual walks and fundraising efforts. Her walk in memory of her husband, PJ McGonagle, already has nearly 30 people registered, with more than two months until the walk...Topics: Patient Voices
Nov 2, 2016
It was 1976 and Theresa Michelle— a newlywed working at the Department of Justice in Washington D.C.—was having trouble holding on to heavy pots and pans. She was soon diagnosed with rheumatoid arthritis, but couldn’t have imagined the two decades of health troubles...Topics: Patient Voices
Oct 18, 2016
FSR recently reached out to members of our online community to ask if they felt that poor air quality, industrial pollution, or any other environmental triggers have caused a flare up or even the development of their sarcoidosis. The post generated an overwhelming...Topics: Patient Voices
Apr 16, 2016
It isn’t easy staying fit when you have a chronic illness. Our conditions can be an incubator for excuses. We all have bad days, pain spikes and our disease affects our respiratory system and our joints. My doctors have told me I should NOT go to the gym or take yoga...Topics: Patient Voices/ Team KISS
Apr 30, 2015
Rick Passaglia thought he had asthma for years, but it turned out to be sarcoidosis. He shares his amazing journey in the second Sarcoidosis Stories for our Seek Answers. Inspire Results....Topics: Patient Voices
