Dec 27, 2022
What’s your volunteer style? Do you want to make a difference in sarcoidosis but not sure exactly what role would suit you best? Take the quiz below to answer some fun questions to determine if you would be a better fit as a Community Outreach Leader or Support...Topics: Awareness/ Other/ Take Action
Nov 17, 2022
Darlene Anita Scott is a writer and visual artist living with sarcoidosis. She applied to become an FSR Global Sarcoidosis Clinic Alliance (GSCA) Community Outreach Leader and is dedicated to sharing her sarcoidosis story with the public to raise awareness and help...Topics: Living with Sarcoidosis/ Patient Voices/ Take Action
Oct 25, 2022
“My hope is that this campaign will greatly increase awareness of sarcoidosis and encourage Black patients to participate in clinical trials. That will ultimately improve our lives and benefit everyone in the sarcoidosis community.” Calvin Harris FSR Patient...Topics: Living with Sarcoidosis/ News/ Other/ Patient Voices/ Research/ Take Action
Oct 20, 2022
If you have sarcoidosis, you MUST join the Foundation for Sarcoidosis Research (FSR) Patient Registry. With less than 200,000 of us diagnosed each year, we are the sources of data needed to advance sarcoidosis research. FSR created the Patient Registry to share...Topics: Living with Sarcoidosis/ Research/ Take Action
Oct 11, 2022
Most of us in our 60’s start looking forward to the day when we are no longer dependent on employer paid health insurance or the marketplace and can go on Medicare. We envision a much simpler process and perhaps, naively, that the focus will be on getting our...Topics: Advocacy/ Living with Sarcoidosis/ Patient Voices/ Take Action
Jan 24, 2022
Act Now to Protect Drug Development. As part of the budgeting process, Congress is discussing cutting back the Orphan Drug Tax Credit for pharmaceutical companies. Most of the drugs in sarcoidosis are not FDA-approved for sarcoidosis, but are repurposed from...Topics: Advocacy/ News/ Patient Voices/ Take Action
Nov 29, 2021
#GivingTuesday marks the official start to the charitable giving season! On #GivingTuesday we want to you join us in creating a movement to help stop sarcoidosis. To help celebrate this international day of giving back, we are going to take social media by...Topics: News/ Take Action
Jan 11, 2021
FSR is nothing without the efforts of our volunteers. While FSR has kept our Advocate applications open year-round and will continue to do so throughout 2021, if you’re looking to step up your involvement, or step into a new role, now is the time! FSR always welcomes...Topics: News/ Take Action
Dec 23, 2019
There are many ways that patients can help advance sarcoidosis research and aid in finding a cure. For example, patients can host fundraisers in their hometowns, participate in clinical trials, and raise awareness about the disease. All of these efforts make a huge...Topics: Research/ Take Action
Nov 10, 2019
Giving Tuesday is just around the corner! For those who don’t know, this event happens annually on the Tuesday after Thanksgiving. Giving Tuesday is essentially the nonprofit world’s version of “Black Friday” or “Small Business...Topics: News/ Take Action
