FSR In-Person Global Sarcoidosis Clinic Alliance Meeting
October 23, 2025 in Chicago, IL
The Foundation for Sarcoidosis Research Global Sarcoidosis Clinic Alliance (FSR-GSCA) consists of 44 institutions and includes clinicians and providers from all disciplines supporting those impacted by sarcoidosis. The goal of the clinical programs associated is to create a collaborative network of clinicians, researchers, and allied professionals and to provide avenues for best practice sharing, clinician education, and innovative programming.
In the fall of 2025, FSR will be hosting our first-ever clinician-facing Alliance program. This 3-hour program will include a strategy session for improving patient care and outcomes, case studies, and debates about hot button topics including the rise of pulmonary and cardiac sarcoidosis cases, whether sarcoidosis is still a rare disease, and impact of climate change and natural disasters on sarcoidosis.
This event will follow on the heels of the FSR 25th Anniversary Awards Gala. Join together with your colleagues to celebrate and honor leaders in the space. Learn more and register here.
Interested in joining the FSR-GSCA? Contact Julie@stopsarcoidosis.org for more information.
Tentative Agenda*
8:00–8:30am CT
Breakfast
8:30–8:50am CT
Opening (FSR Team)
CEO Opening
Research Team – Registries Update
8:50–9:20am CT
Keynote: How to Catalyze Transformation Through Collaboration and Innovation (20 minutes/10 minute Q&A) – (Speaker TBD)
9:20–9:40am CT
Debate: Is Sarcoidosis Rare or Is That there are Rare Manifestations? (Speaker TBD)
9:40–9:50am CT
Break
9:50–10:10am CT
Breakouts Discussions (Attendees will choose breakouts)
-Multi-Disciplinary Care for Sarcoidosis: Team Meeting Strategies, Best Practice Sharing
-How to keep patients adherent with appointments, meds, care, every factor dealing with sarc
-Considerations for Sarcoidosis Treatments: When do you pump the breaks/When to Add New Therapy
-Community Clinician Mentoring Programs Strategies
10:10–10:20am CT
Buffer moving back to main group
10:20–10:50am CT
Workshop: The Power of the FSR Global Sarcoidosis Clinic Alliance – Building a strategy for the future (FSR Lead)
(All attendees participate)
10:50–11:00am CT
Closing (FSR Staff)
11:00–12:40pm CT
Lunch
*Maybe be subject to change