Welcome to the Foundation for Sarcoidosis Research's (FSR) RARE Revolution Magazine #TuesdayTakeover!
Today, we're joining RARE Revolution to share information, resources, and opportunities to raise awareness of sarcoidosis, clinical trials, and the work FSR is leading to improve care and advance health equity.
Below, you'll find featured resources and links referenced throughout today's takeover, making it easy to learn more and revisit the topics highlighted in each post.
Whether you're living with sarcoidosis, caring for a loved one, a healthcare professional, researcher, advocate, or simply interested in learning more, there are many ways to get involved, and there's a place for you in the FSR community.
Ready to stay involved? Explore the resources below, learn more about FSR's programs, and discover ways to join our community and help advance research, advocacy, and support for everyone affected by sarcoidosis.
Follow the conversation on social media:
RARE Revolution Magazine: @RARERevolutionMagazine (Facebook and Instagram), @RARERevolutionM (X)Foundation for Sarcoidosis Research: @StopSarcoidosis (Facebook, Instagram, X), Foundation for Sarcoidosis Research (LinkedIn)
Click here to watch the video and see the impact we're making together and the future we're building.
Learn about sarcoidosis, the organs it can affect, common symptoms, and available resources here.
Then explore the Ignore No More Initiative, beginning with our first campaign focused on Black women living with sarcoidosis. Learn more.
Learn more about sarcoidosis and how it is diagnosed. Learn more.
Learn More about FSR's Ignore No More Initiative: ACTe Now!, to advance health equity and improve access to research, education, and care.
Whether you're considering a clinical trial or simply want to learn more, the Clinical Trials Roadmap can help you navigate the process with confidence. View the Clinical Trials Roadmap.
Ready to explore? Find a clinical trial that’s right for you!
Whether you're living with sarcoidosis or caring for someone who is, your experiences matter.
Want to learn more? Watch a short video and learn how you can join the FSR Patient Registry. View the video here.
The FSR Global Sarcoidosis Clinic Alliance brings together patients, clinicians, and hospitals to expand access to expert care, advance research, and strengthen support for people living with sarcoidosis.
The Coalition to Transform Clinical Trial Engagement is working together to reduce barriers to clinical trial participation through initiatives like expanded Family and Medical Leave Act (FMLA) protections and the Champions for Change – PTO Initiative. Patients, organizations, and employers are invited to join us.
Your donation helps FSR accelerate research, develop patient and clinician resources, expand patient support programs, and raise awareness of sarcoidosis.
Thank you for joining us today! The conversation doesn't end here. Whether you're a patient, caregiver, clinician, researcher, advocate, or industry partner, there's a place for you in the FSR community. Get involved.
Join us at our upcoming event: FSR Philadelphia Sarcoidosis Summit. Learn more and register.
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