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FSR Virtual Global Sarcoidosis Summit

United for Progress

A New Chapter in Sarcoidosis

Saturday, June 28 - Sunday, June 29, 2025 

Registration for this event is now closed.

Each person’s sarcoidosis story is unique. The FSR’s Virtual Global Sarcoidosis Summit is a virtual global arena offering a library of resources, countless educational booths and materials, and over 20 live and interactive virtual sessions with world-renowned experts in sarcoidosis.  

This 2-day virtual event aims to empower patients, caregivers, and clinicians to work together to turn the page on sarcoidosis. Whether you are living with sarcoidosis or supporting someone who is, this summit is for you. 

Throughout this event, you will have opportunities to meet and hear from others who are on a similar journey through our extensive virtual community discussion forums, networking sessions, and chat tools. You will connect with other sarcoidosis patients and supporters and receive access to the latest in sarcoidosis research and information to help you make informed decisions about your or your loved one’s care.

"I have never gotten so much valuable information about this disease."

-  Past Summit Attendee

This year’s program includes enhanced  education and networking opportunities including:

Dynamic platform,  personalized sessions, and AI generated recommendations

If you have joined us for past virtual summits, you will be pleased to know that we will continue to use the same user-friendly platform designed to promote interaction, engagement, and networking.

If this is your first time joining the virtual summit, rest assured that the platform will make it easy for you to create connections, find relevant sessions, and build your community.

 

Sarcoidosis 101 Education Tracks

Whether this is your first time learning about sarcoidosis or you have attended educational events before, you will find important information and insights in these sarcoidosis expert-led sessions.

Unique and Rarely Discussed Topics

This year we are proud to partner with clinical and research leaders from around the globe to address unique topics that are not commonly found in webinar series such as pediatric and juvenile sarcoidosis, sexuality and sarcoidosis, transplantation, and shared decision-making about care and emerging therapeutics.

 

Innovative and interactive sessions and workshop for patients, loved ones, and supporters

Invite your friends and family! Having a community of people with different perspectives allows all of us to learn from each other and lean on each other during the sarcoidosis journey.

This event is for anyone who is impacted by sarcoidosis, whether you are living with the disease or love and support someone who is. All are welcome. Together we can improve the lives for all impacted by sarcoidosis.

 

Interactive educational booths featuring resources from world-renowned sarcoidosis clinics, educational and financial support resources, and information on current and emerging therapy

With over 30 educational booths, you are bound to find the information and resources that you need to help you in your journeyYou can bookmark and download guides and resources in order to help you and your loved ones navigate the complex waters of sarcoidosis care and treatment.  

 

Virtual Training

We want everyone to feel comfortable and be ready to make the most of this event, so FSR will provide a training on the platform that virtual “doors” will open four-days before the start of the Summit.

Early access allows you to check out sessions in advance, get familiar with the platform, network with other attendees, and visit exhibit booths to obtain vital information from FSR’s sponsors and partners.

 

Scholarships

Scholarships are available for those who can’t afford the summit fee.

Sessions

This year's sessions offer fresh, engaging and exciting content led by world-renowned experts. Session topics will include:

  • United for Progress: Propelling Us Towards a Brighter Future Together
  • Turning the Page: Resilience and Hope in the Face of Sarcoidosis
  • Sarcoidosis 101: Pulmonary
  • Legislation and Sarcoidosis
  • Poster Sessions: Advancing Knowledge in Sarcoidosis Research
  • Shared Decisions, Stronger Voices: Understanding Sarcoidosis and Advocating for Your Care
  • Sarcoidosis 101: Cardiac
  • Intimacy and Sarcoidosis
  • Mental Health
  • What’s in the Air? Exploring Environmental Triggers in Sarcoidosis
  • Navigating Insurance and Access to Care
  • Anti-inflammatory Diet
  • Patient Panel: Let’s Get Moving: A Patient-Led Talk on Exercise
  • Sarcoidosis 101: Steroids and Sarcoidosis
  • Genetics/Familial Connections
  • The Future of Sarcoidosis Research: What's Next?
  • Poster Sessions: Advancing Knowledge in Sarcoidosis Research
  • Ask the Sarcoidosis Experts
  • What’s Sarcoidosis and What’s Not? Understanding Organ Involvement, Monitoring, and Shared Decisions
  • Sarcoidosis 101: Neurosarcoidosis
  • Rare Manifestations of Sarcoidosis
  • Emerging Therapies for Sarcoidosis: What’s Changing and Why It Matters
  • Managing the Invisible: Fatigue, brain fog and dizziness in Sarcoidosis
  • United for Progress: A Fireside Chat on Confidence, Connection, and Moving Forward

 

Feedback from past Summits

In 18 years, this is the first time I have received such comprehensive information.

Thank you.
Excellent summit!

In over 20 years of having sarcoidosis, this is the most information I have received on my diagnosis.

Excellent summit. I wish I could have experienced this years ago. 

What a very informative Education Summit. 

Thank you to our Sponsors

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