Dec 5, 2019
While cardiac sarcoidosis is diagnosed in around 2-5% of sarcoidosis patients in the United States, recent studies are causing some experts to estimate that the number may be as high as 20-30% of sarcoidosis patients in the U.S. Read about two patient’s experiences with cardiac sarc and heart transplants!
Topics: Patient Voices
May 14, 2019
“The Actemra has been denied. We will start the appeals process.” These two sentences glare at me from the patient portal message center. I feel exposed and vulnerable. Here we go again. My doctor says I need this medication, but my insurance is saying “NO.”I was...Topics: Patient Voices
Feb 1, 2019
Life with sarcoidosis can be hard. This is why we reached out to you, our patients, for advice on how to deal with our medical system.
Topics: Patient Voices
Jan 7, 2019
Life with sarcoidosis can be hard. This is why we reached out to you, our patients, for advice on living a healthier lifestyle.
Topics: Patient Voices
Nov 19, 2018
Many sarcoidosis patients struggle with lung function which can make exercise seem impossible. Programs like Pulmonary Rehabilitation help patients with lung diseases improve lung function, reduce symptoms, and improve quality of life.
Topics: Living with Sarcoidosis/ Patient Voices
Oct 29, 2018
Life with sarcoidosis can be hard. This is why we reached out to you, our patients, to better understand the financial hardships that come with sarcoidosis.
Topics: Patient Voices
Oct 18, 2018
The husband of a sarc warrior is planning an ambitious fundraiser, cycling 5,000 miles to raise $50,000 for sarcoidosis research.
Topics: Patient Voices
Oct 16, 2018
Life with sarcoidosis can be hard and no one knows that better than our patients. This is why we reached out to you, our patients, for advice.
Topics: Patient Voices
Oct 12, 2018
We reached out to our patient ambassadors and asked for their advice on navigating the medical expenses that come with sarcoidosis.
Topics: Living with Sarcoidosis/ Patient Voices
Aug 29, 2018
While all manifestations of sarcoidosis can causes physical symptoms, neurosarcoidosis in particular can come with serious mobility challenges. Mark Taylor is a neurosarcoidosis patient from New Zealand who is overcoming the challenges of neurosarcoidosis to raise...Topics: Patient Voices