Resources
African American Women & Sarcoidosis
Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. Learn more here.
Learn about common signs and symptoms of sarcoidosis.
Signs and symptoms of sarcoidosis vary widely depending on the organs affected. While many people who have sarcoidosis have very few or no signs of the disease, others suffer debilitating effects that can interfere with daily life. Learn more here.
The Sarcoidosis Treatment Guide.
This resource is useful for patients and physicians alike, helping them understand the first, second, and third line treatments for sarcoidosis, including the off-label therapies that are often used in treating the disease. Learn more here.
Sarcoidosis can affect one organ, or multiple organs in the body.
Join the FSR community to receive our monthly newsletter and stay up to date on research, programs and more!
FSR has a vibrant patient advocacy program. Through this program you can find the right volunteer opportunity for your schedule. Become a volunteer advocate, local advocate, peer mentor advocate or patient navigator. Learn more.
Support the Ignore No More Campaign in the following ways:
- Download and share the Ignore No More infographic with your personal and professional networks and on social media.
- Have a group, organization or healthcare institution you’d like our Women of Color Advisory Members to speak at? Contact us!
- Follow FSR on social media to stay connected and share important information (@stopsarcoidosis on Instagram, Facebook, Twitter, and LinkedIn).
- Raise Awareness for Sarcoidosis. Learn more.
The Foundation for Sarcoidosis’ Patient Navigator Program
This program provides one-on-one support for those newly diagnosed with sarcoidosis, in the diagnosis process, experiencing their first flare, and/or new organ manifestation. Learn more.
FSR’s YouTube Wellness Video Series
This video series focuses on Mindfulness and Meditation, which can support decreasing stress, lung health, as well as sleep health, which can influence chronic fatigue. Watch here.
Inspire Online Support Group
FSR has an online support group on Inspire, a health and wellness-focused online community. Patients and caregivers can anonymously post questions, concerns, and thoughts in the support group, and others can comment with help, support, and stories of their own. Learn more.
FSR’s Educational Videos
Our videos host national experts in sarcoidosis who cover a wide range of topics on managing and treating sarcoidosis. Watch now.
FSR's Emotional and Mental Wellness Series
This series features video sessions facilitated by clinical mental health professionals on topics important to our sarcoidosis community, including stress, therapy, and pain management. Watch now.
Sarc Fighter Podcast
Sarcoidosis warrior and FSR advocate John Carlin hosts this podcast focused on all the big topics that affect sarcoidosis patients and their loved ones, from the basics of the disease, lifestyle changes, treatment options, research progress, and more. Learn more.
Check out more educational and informative sarcoidosis videos on our YouTube Channel. Learn more.
Share your experiences living with sarcoidosis, drive important research, and receive clinical trial updates.
Physicians’ Treatment Protocol
FSR’s Scientific Advisory Board developed a treatment protocol that can offer expert information to physicians to help guide their diagnosis and treatment decisions. Learn more.
Understanding Clinical Trials and Eligibility Criteria.
Clinical Trial on Pulmonary Sarcoidosis
FSR is currently partnering with Novartis for a trial investigating pulmonary sarcoidosis, which is most prevalent in African American Women. Learn more.
Equitable Access to Clinical Trials:
Read: A Hidden Opportunity — Medicaid’s Role in Supporting Equitable Access to Clinical Trials | NEJM.
Find a Clinical Trial.
Search this directory of clinical trials for sarcoidosis. Learn more.
Sign up to receive notifications when sarcoidosis clinical trials become available.
FSR's Research Library
This library contains links to the research publications that have been funded through various FSR Grants. Learn more.
Diversity White Paper
Read FSR's white paper on Addressing Disparities and Diversity in Care of Patients Living with Sarcoidosis to Improve Diagnosis, Treatment, and Outcome.
Project Implicit at Harvard University has an implicit association assessment (IAT) to measure implicit bias.
Learn about Project Implicit here and take the IAT assessment