Mar 25, 2025
When exposed to wildfires and during the clean up, consider the following precautions to protect your health. Stay Indoors: When possible, minimize exposure to outdoor air by staying indoors, particularly during peak smoke periods. Use air purifiers to improve indoor...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Other
Nov 18, 2024
In August of 2023, the Foundation for Sarcoidosis Research (FSR) submitted a Request for Opinion Letter on Clinical Trials and the Family and Medical Leave Act (FMLA) with the U.S. Department of Labor (DOL). On November 8, 2024, FSR received a letter of clarification...Topics: Advocacy/ Living with Sarcoidosis/ News/ Research
Oct 31, 2024
On October 28, 2024, the Foundation for Sarcoidosis Research (FSR) hosted a groundbreaking Externally Led Patient-Focused Drug Development (EL-PFDD) meeting on sarcoidosis with the U.S. Food and Drug Administration (FDA). This virtual event attracted nearly 350...Topics: Advocacy/ Awareness/ Patient Voices/ Take Action
May 20, 2024
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients, takes a bold step forward in addressing health disparities by announcing the launch of the...Topics: Advocacy/ Awareness/ Community Partners/ News/ Research
Feb 13, 2024
The Foundation for Sarcoidosis Research is part of a 27-member coalition dedicated to improving access to supplemental oxygen for all in need. Chasta Posey, FSR Patient Advocate, Patient Navigator, Member of the FSR Women of Color Advisory Committee, and FSR Global...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Patient Voices/ Take Action
Sep 15, 2023
Beginning September 16th, Walgreens, a pharmacy and retail leader who plays a critical role in the U.S. healthcare system by providing a wide range of pharmacy and healthcare services, including those that drive equitable access to care for the nation’s medically...Topics: Advocacy/ Awareness/ Community Partners/ COVID-19/ Living with Sarcoidosis/ News
Sep 14, 2023
Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-day training of patient Volunteer Leaders to collaborate with and support the FSR...Topics: Advocacy/ News/ Patient Voices
Sep 5, 2023
With more than 250,000 Americans living with interstitial lung disease (ILD) and pulmonary fibrosis (PF), nine organizations are joining forces to present the third annual ILD Day on Wednesday, Sept. 13, to drive awareness of the diseases. ILD is the umbrella term...Topics: Advocacy/ Awareness/ News/ Online Educational Content/ Research
May 22, 2023
Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to elevating research, raising awareness and providing support for individuals affected by sarcoidosis, is proud to announce the release of the Ignore No More Campaign on...Topics: Advocacy/ Awareness/ News/ Online Educational Content/ Research
Oct 11, 2022
Most of us in our 60’s start looking forward to the day when we are no longer dependent on employer paid health insurance or the marketplace and can go on Medicare. We envision a much simpler process and perhaps, naively, that the focus will be on getting our...Topics: Advocacy/ Living with Sarcoidosis/ Patient Voices/ Take Action
