Mar 16, 2023
The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-day training of patient volunteer leaders to collaborate with and support the FSR...Topics: Awareness/ News/ Patient Voices
Mar 16, 2023
Foundation for Sarcoidosis Research (FSR) has been named an Official Charity Partner for the 2023 TCS New York City Marathon, which takes place on Sunday, November 5. FSR will be among more than 550 official charity partners providing thousands of runners the...Topics: Awareness/ News/ Other/ Take Action
Dec 27, 2022
What’s your volunteer style? Do you want to make a difference in sarcoidosis but not sure exactly what role would suit you best? Take the quiz below to answer some fun questions to determine if you would be a better fit as a Community Outreach Leader or Support...Topics: Awareness/ Other/ Take Action
Sep 30, 2022
[su_quote cite=”Calvin”]”When I was diagnosed in 2014, sarcoidosis was a big word with a lot of scary outcomes (which sometimes still applies, of course). But FSR helped turned my fears into positive actions.”[/su_quote] FSR Patient Advisory...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Sep 1, 2022
Over the past two years, this Global Pandemic has been changing the way we all exist and go about living our ‘normal’ daily lives – if there is such a thing anymore. Some of these adjustments may be temporary, while some may end up being the way we ‘do business’...Topics: Awareness/ COVID-19/ Living with Sarcoidosis/ Patient Voices
May 24, 2022
In February 2022, FSR hosted Ignore No More: African American Women & Sarcoidosis Webinar, a virtual engaging discussion on sarcoidosis, how it impacts African American women, and what can be done to improve outcomes. Mary Oldham was one of the attending...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
May 6, 2022
You may have a lot of questions about sarcoidosis, especially if you are newly diagnosed. And other times, you may not know what to ask your sarcoidosis specialist, especially in the moment. We recommend jotting down a few notes ahead of time to bring with you...Topics: Awareness/ Living with Sarcoidosis/ Online Educational Content
Apr 8, 2022
In September 2021, an article entitled “Challenges of Sarcoidosis and Its Management” (Drent et al., 2021) was published in the prestigious New England Journal of Medicine. This article, written by two active members on FSR’s Scientific Advisory Board, Marjolein...Topics: Awareness/ Living with Sarcoidosis/ News/ Online Educational Content
