Apr 14, 2018
FSR is consistently working to ensure that researchers and physicians have plentiful opportunity to get involved in the world of sarcoidosis research. One such way is our recent $1M investment in our new Clinical and Research Fellowship Program. We also recently give...Topics: Community Partners/ News
Apr 10, 2018
If you missed our webinar with Bob Baughman, MD to celebrate Lung Disease Week at the American Thoracic Society you can watch it here!Topics: Community Partners/ News/ Online Educational Content
Mar 1, 2018
One of FSR’s Awareness Campaign partners, the American Lung Association is hosting a webinar featuring FSR Scientific Advisory Board member Lisa Maier, MD MSPH from National Jewish Health, as well as sarcoidosis patient Tia Gray. This presentation will give a...Topics: Community Partners/ FSR Events/ Online Educational Content
Feb 28, 2018
It’s Rare Disease Day! Each year, Rare Disease Day falls on the last day of February. This is a day for the rare disease community to come together and celebrate what we have in common as well as what makes us all, well….rare! We hope to raise awareness...Topics: Community Partners/ News
Feb 12, 2018
Several of FSR’s Patient Ambassadors have been making waves to raise awareness of sarcoidosis with their local legislators. While many ambassadors and other volunteers work towards obtaining state proclamations recognizing April as Sarcoidosis Awareness Month in...Topics: Community Partners/ News
Dec 7, 2017
Our online support community has continued to grow over the past few years, reaching 40,000 online members this month! The Stop Sarcoidosis support community is hosted on the platform Inspire, which provides a space for online support communities that allow patients...Topics: Community Partners/ News
Nov 20, 2017
FSR Executive Director Ginger Spitzer attended the 2017 ATS Public Advisory Roundtable Planning Meeting on Nov 17-18 in Miami. Our membership in PAR allows FSR to continue our work toward advocating for patients and ensuring the patient perspective into clinical and...Topics: Community Partners/ News
Jun 5, 2017
Ginger Spitzer, the Executive Director for the Foundation for Sarcoidosis Research, will be a panelist at this year’s Drug Information Association’s Annual Conference. The DIA 2017 Annual Meeting is the largest, longest-running event in the life sciences...Topics: Community Partners/ News
Feb 15, 2017
As we announced earlier this month, Penn Medicine launched the first ever Apple Researchkit app for sarcoidosis patients. Spearheaded by Dr. Misha Rosenbach, a member of FSR’s Scientific Advisory Board, the app aims to not only provide patients across the country (and...Topics: Community Partners
Feb 9, 2017
The National Organization for Rare Disorders is starting a patient-driven campaign to highlight the significant impact that the Affordable Care Act has had on patients with rare and chronic diseases. Some noticeable changes for these patients was prohibiting...Topics: Community Partners
