Feb 12, 2018
Several of FSR’s Patient Ambassadors have been making waves to raise awareness of sarcoidosis with their local legislators. While many ambassadors and other volunteers work towards obtaining state proclamations recognizing April as Sarcoidosis Awareness Month in...Topics: Community Partners/ News
Dec 7, 2017
Our online support community has continued to grow over the past few years, reaching 40,000 online members this month! The Stop Sarcoidosis support community is hosted on the platform Inspire, which provides a space for online support communities that allow patients...Topics: Community Partners/ News
Nov 20, 2017
FSR Executive Director Ginger Spitzer attended the 2017 ATS Public Advisory Roundtable Planning Meeting on Nov 17-18 in Miami. Our membership in PAR allows FSR to continue our work toward advocating for patients and ensuring the patient perspective into clinical and...Topics: Community Partners/ News
Jun 5, 2017
Ginger Spitzer, the Executive Director for the Foundation for Sarcoidosis Research, will be a panelist at this year’s Drug Information Association’s Annual Conference. The DIA 2017 Annual Meeting is the largest, longest-running event in the life sciences...Topics: Community Partners/ News
Feb 15, 2017
As we announced earlier this month, Penn Medicine launched the first ever Apple Researchkit app for sarcoidosis patients. Spearheaded by Dr. Misha Rosenbach, a member of FSR’s Scientific Advisory Board, the app aims to not only provide patients across the country (and...Topics: Community Partners
Feb 9, 2017
The National Organization for Rare Disorders is starting a patient-driven campaign to highlight the significant impact that the Affordable Care Act has had on patients with rare and chronic diseases. Some noticeable changes for these patients was prohibiting...Topics: Community Partners
Feb 9, 2017
FSR’s partner Inspire, which serves as the platform for our online support group- “Stop Sarcoidosis”- has hit 1 million members! Inspire provides a space for online support communities that allow patients to connect with others like them, regardless of geography....Topics: Community Partners
Sep 14, 2016
As a foundation, our goals start with ensuring that patients are getting accurate educational information and end with our ultimate mission: stop sarcoidosis. Some of our work is highly visible, like our physician registry, patient conferences, and our online support...Topics: Community Partners
Jul 29, 2016
We are excited to announce that Ginger Spitzer, Executive Director for the Foundation for Sarcoidosis Research, will present a session at the 44th Annual NBNA Institute and Conference. FSR recognizes sarcoidosis to be a debilitating disease for which there is limited...Topics: Community Partners/ News
Mar 7, 2016
Please join the Foundation for Sarcoidosis Research (FSR) and the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) for the 8th International WASOG Conference on Diffuse Parenchymal Lung Diseases, which will be held on June 2–4, 2016 in...Topics: Community Partners/ FSR Events
