Our online support community has continued to grow over the past few years, reaching 40,000 online members this month! The Stop Sarcoidosis support community is hosted on the platform Inspire, which provides a space for online support communities that allow patients...
FSR Executive Director Ginger Spitzer attended the 2017 ATS Public Advisory Roundtable Planning Meeting on Nov 17-18 in Miami. Our membership in PAR allows FSR to continue our work toward advocating for patients and ensuring the patient perspective into clinical and...
Ginger Spitzer, the Executive Director for the Foundation for Sarcoidosis Research, will be a panelist at this year’s Drug Information Association’s Annual Conference. The DIA 2017 Annual Meeting is the largest, longest-running event in the life sciences...
As we announced earlier this month, Penn Medicine launched the first ever Apple Researchkit app for sarcoidosis patients. Spearheaded by Dr. Misha Rosenbach, a member of FSR’s Scientific Advisory Board, the app aims to not only provide patients across the country (and...
The National Organization for Rare Disorders is starting a patient-driven campaign to highlight the significant impact that the Affordable Care Act has had on patients with rare and chronic diseases. Some noticeable changes for these patients was prohibiting...
FSR’s partner Inspire, which serves as the platform for our online support group- “Stop Sarcoidosis”- has hit 1 million members! Inspire provides a space for online support communities that allow patients to connect with others like them, regardless of geography....
As a foundation, our goals start with ensuring that patients are getting accurate educational information and end with our ultimate mission: stop sarcoidosis. Some of our work is highly visible, like our physician registry, patient conferences, and our online support...
We are excited to announce that Ginger Spitzer, Executive Director for the Foundation for Sarcoidosis Research, will present a session at the 44th Annual NBNA Institute and Conference. FSR recognizes sarcoidosis to be a debilitating disease for which there is limited...
Please join the Foundation for Sarcoidosis Research (FSR) and the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) for the 8th International WASOG Conference on Diffuse Parenchymal Lung Diseases, which will be held on June 2–4, 2016 in...
The Investigator Databank is a global collaboration between Janssen, Lilly, Merck, Pfizer and Novartis (with more companies to come) to share investigator information that each company has on file with one another. Investigator Databank aims to reduce administrative...
