Feb 28, 2024
Are you thinking about participating in a clinical trial? Here are 6 things you should know! Clinical trials can be an intimidating and unexplored area for many people. Some may have been exposed to the basic principles of research methods in school, while others may...Topics: Awareness/ News/ Online Educational Content/ Other/ Research/ Take Action
Sep 5, 2023
With more than 250,000 Americans living with interstitial lung disease (ILD) and pulmonary fibrosis (PF), nine organizations are joining forces to present the third annual ILD Day on Wednesday, Sept. 13, to drive awareness of the diseases. ILD is the umbrella term...Topics: Advocacy/ Awareness/ News/ Online Educational Content/ Research
May 22, 2023
Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to elevating research, raising awareness and providing support for individuals affected by sarcoidosis, is proud to announce the release of the Ignore No More Campaign on...Topics: Advocacy/ Awareness/ News/ Online Educational Content/ Research
Jun 29, 2022
FSR is proud to bring together sarcoidosis patients, caregivers, and family and friends at the Third Annual Global Virtual Patient Summit: Unveiling Possibilities. This summit is the world’s largest virtual sarcoidosis patient event. This year’s summit...Topics: FSR Events/ Online Educational Content
May 6, 2022
You may have a lot of questions about sarcoidosis, especially if you are newly diagnosed. And other times, you may not know what to ask your sarcoidosis specialist, especially in the moment. We recommend jotting down a few notes ahead of time to bring with you...Topics: Awareness/ Living with Sarcoidosis/ Online Educational Content
Apr 8, 2022
In September 2021, an article entitled “Challenges of Sarcoidosis and Its Management” (Drent et al., 2021) was published in the prestigious New England Journal of Medicine. This article, written by two active members on FSR’s Scientific Advisory Board, Marjolein...Topics: Awareness/ Living with Sarcoidosis/ News/ Online Educational Content
Feb 9, 2022
FSR Sarcoidosis Support Group In response to feedback received in 2021 and a growing need to support patients where they are, FSR has launched an online peer-led support group for people living with sarcoidosis. While 2025 will bring additional, more localized...Topics: FSR Events/ Living with Sarcoidosis/ Online Educational Content
Apr 20, 2021
Click here to register now! Join us for this year’s Virtual Patient Education Summit, June 12-13, 2021! Our summits in September and November of 2020 were incredibly successful. This year we will be offering a unique two-day experience on a fun, interactive...Topics: FSR Events/ Online Educational Content/ Patient Voices
Nov 12, 2020
As the holidays approach in what has been a uniquely challenging year, FSR is excited to support sarcoidosis warriors and their care partners through a Mindfulness and Meditation Workshop Series. Lead by Susan D’Agostino, a sarcoidosis warrior certified in mindfulness...Topics: FSR Events/ Online Educational Content
Sep 11, 2020
Right now, the world can feeling more isolating than ever. With the COVID-19 pandemic bringing much our our usual summer activities to a grinding halt, the rest of the world now has a glimpse into the feelings of isolation that can be so common in the lives of those...Topics: FSR Events/ Online Educational Content
