Jul 25, 2022
Where will you be on July 30 and 31, 2022? For those of us with sarcoidosis, the above dates will be important ones if you want to learn more about sarcoidosis and managing your disease. From July 30-31, The Foundation for Sarcoidosis Research (FSR) will...Topics: Other
Jul 18, 2022
On April 21, 2022, The Foundation for Sarcoidosis Research (FSR) hosted a virtual Patient Listening Session on Pulmonary Sarcoidosis with the US Food and Drug Administration (FDA). FDA Patient Listening Sessions are small, informal, non-regulatory, non-public...Topics: Advocacy/ Community Partners/ News/ Other/ Patient Voices
May 19, 2022
SUNY Upstate Medical University Auyon Ghosh MD, MPH, to be presented with $50,000 Partnership Research Grant from American Thoracic Society and Foundation for Sarcoidosis Research The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit...Topics: News/ Other/ Research
Apr 21, 2022
Distinctive: Discussions of Disparities & Diversity in Sarcoidosis Addressing Disparities and Diversity in Care of Patients Living with Sarcoidosis to Improve Diagnosis, Treatment, and Outcome. To fully understand sarcoidosis, we must understand the...Topics: Other
Feb 11, 2022
The Foundation for Sarcoidosis Research (FSR)’s team is growing to better support the needs identified by the sarcoidosis community! FSR is pleased to announce that Diane Driscoll joined the FSR team as Global Head of Clinical Engagement effective February 1, 2022. ...Topics: News/ Other
Dec 28, 2021
This year, the Foundation for Sarcoidosis Research (FSR) has made incredible progress towards our mission thanks to your support! There have been significant strides made towards accelerating research initiatives and providing resources to patients around the...Topics: News/ Other
Oct 1, 2021
Mary McGowan’s Reflections on her First Year Anniversary as FSR’s CEO Over the last year, I learned how resilient the FSR community is, especially during these challenging times of a pandemic. I am so impressed by the passion, dedication and focus...Topics: News/ Other
Sep 24, 2021
On September 13, 2021, aTyr Pharma announced positive results from their Phase1b/2a clinical trial for ATYR1923 in pulmonary sarcoidosis. FSR is proud to have supported this clinical trial. The trial demonstrated that ATYR1923 was safe and well-tolerated, 33%...Topics: Living with Sarcoidosis/ News/ Other/ Research
Jul 19, 2021
We are thrilled to announce the formation of our new FSR Patient Speakers’ Bureau! This bureau consists of 14 experienced and trained sarcoidosis patient advocates who will share their personal stories to advocate for FSR and raise awareness for...Topics: Advocacy/ Living with Sarcoidosis/ News/ Other/ Patient Voices
May 5, 2021
Authors: Arindam Singha, MD1; Tricha Shivas, MBe2 ; Elliot D. Crouser, MD1 Since it was declared a global pandemic in March of 2020, the coronavirus disease 2019 (COVID-19) has affected over 100 million lives globally. It has been demonstrated that patients...Topics: COVID-19/ Living with Sarcoidosis/ News/ Other/ Research
