Category: Patient Voices

Environmental Triggers: Growing Up in Rubbertown

Oct 18, 2016

FSR recently reached out to members of our online community to ask if they felt that poor air quality, industrial pollution, or any other environmental triggers have caused a flare up or even the development of their sarcoidosis. The post generated an overwhelming...

Topics: Patient Voices

One Step at a Time

Apr 16, 2016

It isn’t easy staying fit when you have a chronic illness. Our conditions can be an incubator for excuses. We all have bad days, pain spikes and our disease affects our respiratory system and our joints. My doctors have told me I should NOT go to the gym or take yoga...

Topics: Patient Voices/ Team KISS

Seek Answers Inspire Results -Rick’s Story

Apr 30, 2015

Rick Passaglia thought he had asthma for years, but it turned out to be sarcoidosis. He shares his amazing journey in the second Sarcoidosis Stories for our Seek Answers. Inspire Results....

Topics: Patient Voices

Patient of the Week- Emily Pomkala

Aug 30, 2013

For our final week we honor Emily Pomkala. We could not think of a better person to end our month with because of her continuous work of improving the health of herself and others.   Emily was first diagnosed in 2007, she suffers from lymphatic and pulmonary...

Topics: Patient Voices

Patient of the Week- Cristal Davis!

Aug 16, 2013

In our third week, we honor Cristal Davis for the work that she does and the bond she has created with sarcoidosis patients. Cristal was first diagnosed with sarcoidosis in 2009. It affects her lungs, liver, eyes, bones and skin. We want to highlight her story because...

Topics: Patient Voices

Patient of the Week- Andrea Acton!

Aug 9, 2013

In our second week of the Patient of the Month we honor Andrea Acton! The work she has done on behalf of sarcodiosis has created disease awareness not only in her community but in West Virginia, and nationally.   Andrea was diagnosed with sarcoidosis in 2005. Since...

Topics: Patient Voices

Patient of the Week!- Lona King

Aug 2, 2013

This August we are featuring Patients of the Month! Each Friday, we will be highlighting a new patient. Every patient is different, and FSR wants to bring patient achievements and awareness created for sarcoidosis to light. This is Lona King. Lona had pulmonary and...

Topics: Patient Voices