Category: Research
New Diagnostic Criteria Developed for Neurosarcoidosis
Neurosarcoidosis is particularly hard to diagnose, but new diagnostic criteria will help ensure all patients are receiving the best care possible.
PRESS RELEASE: aTyr Pharma announces pulmonary sarcoidosis trial in collaboration with FSR
aTyr Pharma Announces Initiation of Phase 1b/2a Study of ATYR1923 in Patients with Pulmonary Sarcoidosis and Collaboration with the Foundation for Sarcoidosis Research (FSR) FSR Clinical Studies Network to assist with clinical site initiation to expedite...
Interview to Understand Experience Living with Sarcoidosis
A doctoral student at Northcentral University is doing a research study about the experience of living with sarcoidosis. Participants must: Be age 21 years or older Have had sarcoidosis for at least one year Or Live with a family member for at least one year that has...
Clinical Studies Network (2019 Update)
In 2019 the Clinical Studies Network (CSN) will conduct a study focused on cardiac sarcoidosis at all 12 of our sites.
Will You Help Us Find a Cure for Sarcoidosis?
FSR strives to bring patients the most up-to-date information about sarcoidosis, but we can’t do that without you. Besides being a rare disease, affecting only 200,000 people in the U.S., sarcoidosis is commonly misdiagnosed. The limited data that does exist doesn’t...
FSR Hosts Clinical Studies Network Meeting in Chicago
The members of the FSR Clinical Studies Network met on June 29th in Chicago, Illinois to determine and plan the next CSN Core Study as well as identify opportunities for additional Elective Studies via industry. Members traveled from all across the US, as well as...
FSR Staff Presents at International Sarcoidosis Conference
Three FSR team members presented at the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) Annual Meeting in Crete, Greece this month. The conference was an annual meeting between the leading experts in sarcoidosis research and clinical care...
Penn Medicine’s Sarcoidosis App Now on Android!
We received a great deal of feedback asking when the app would be available on android devices. It has always been our goal to have the app available to everyone to give equal access to these sarcoidosis resources, as well as to help sarcoidosis researchers obtain the...