Foundation for Sarcoidosis Research (FSR) receives funding and gifts from many sources. We have seen an increase in the number of inquiries about giving to FSR through a DAF, a donor advised fund. We thought we would take a moment to share information that is useful as you begin to plan for year-end giving.
What is a Donor-Advised Fund?
Donor-advised funds (DAFs) are charitable giving accounts that individual donors open with sponsoring organizations for the purpose of long-term giving.
The donor, or DAF holder, serves as an advisor, meaning they can add money to the fund any time they like, let the sponsor manage it, and receive immediate charitable tax deductions.
Later, the donor can request distributions from the fund to specific nonprofits, such as Foundation for Sarcoidosis Research. There are currently no regulations on how much DAFs must be distributed annually. It is up to the donor and sponsor’s discretion.
- DAF holders contribute money to their accounts at any time, which counts as a tax-deductible donation. After contributing, they can leave the funding alone or request that grants be made to specific organizations or causes, like FSR.
- The DAF sponsor manages the fund, investing the money to give the fund the chance to grow over time. Later, they disburse grants to organizations per the donor’s preferences and requests.
- Nonprofits receive grants based on the donor’s grant requests. Donors might generally ask that grants go toward a certain cause or request specific donations (e.g., “Please grant $1,000 from my DAF to the Foundation for Sarcoidosis Research”).
How Donors Can Request a DAF Withdrawal
Donors contact their DAF sponsor and request a certain amount to be granted to a specific organization, such as Foundation for Sarcoidosis Research (the sponsor can say no, but it’s rare). Exactly where they make the request and what details they need to provide will vary based on their sponsoring organization. The DAF sponsor will have a link to initiate a request that will instantly provide detailed instructions for requesting DAF grants from that sponsor.
To support innovative research such as the FSR Research Agenda, empower patients to help fuel progress such as the Voice of the Patient Report, or continue the funding of the FSR Data Patient Registry you can follow the steps below to request a DAF to support the sarcoidosis community by funding FSR’s mission.
What do you need to know?
- Log in to your DAF account
- Search for: Foundation for Sarcoidosis Research
(Address for verification: 320 W. Ohio St., Suite 300, Chicago, IL, 60654)
- Enter our EIN: 39-4378232
- Recommend your grant to support FSR’s mission to fund innovative research,
education, and patient resources that impact the sarcoidosis community.
- Submit your recommendation. Your DAF sponsor will send the donation directly to FSR.
If you need help, your financial advisor or fund manager can walk you through the process in minutes. If you have questions for FSR, please call 312-341-0500 or email us at info@stopsarcoidosis.org.
Take note, there have been changes that may impact gifts differently in 2026. In July 2025, Congress passed the “One Big Beautiful Bill” (OBBBA), a tax reform bill. Under the new law, charitable deductions will soon be capped and partially limited. That means donors who wait until 2026 could lose potential tax benefits. But giving now — through your DAF or other charitable means — ensures your gift has the greatest possible impact to support Foundation for Sarcoidosis Research .