Category: Community Partners
FSR Attends Hill Day
On Oct. 2nd and 3rd FSR’s Executive Director, Ginger Spitzer, was able to travel with PAR to Washington D.C for ATS Hill Day.
Become a Sarcoidosis Advocate in Your Hometown!
Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...
Find Your Community: Connecting with Other Chronic Illness Warriors
Written by Margot Hahn Communications Intern At FSR, we aim to find avenues that connect sarcoidosis patients across the United States and abroad. People living with sarcoidosis are no stranger to the degree of unknown information about the disease and its effects....
Educating the Public with RareInsights
Our partners at NORD recently launched a new initiative called RareInsights: RareInsights™ is a NORD® initiative to help expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. Through this initiative,...
Announcing AASOG Travel Awards
FSR is consistently working to ensure that researchers and physicians have plentiful opportunity to get involved in the world of sarcoidosis research. One such way is our recent $1M investment in our new Clinical and Research Fellowship Program. We also recently give...
VIDEO: Webinar Available from Sarcoidosis Week at the ATS
If you missed our webinar with Bob Baughman, MD to celebrate Lung Disease Week at the American Thoracic Society you can watch it here!
WEBINAR | Sarcoidosis: What You Need to Know
One of FSR’s Awareness Campaign partners, the American Lung Association is hosting a webinar featuring FSR Scientific Advisory Board member Lisa Maier, MD MSPH from National Jewish Health, as well as sarcoidosis patient Tia Gray. This presentation will give a...
#ShowYourRare for Rare Disease Day!
It’s Rare Disease Day! Each year, Rare Disease Day falls on the last day of February. This is a day for the rare disease community to come together and celebrate what we have in common as well as what makes us all, well….rare! We hope to raise awareness...