Oct 31, 2024
On October 28, 2024, the Foundation for Sarcoidosis Research (FSR) hosted a groundbreaking Externally Led Patient-Focused Drug Development (EL-PFDD) meeting on sarcoidosis with the U.S. Food and Drug Administration (FDA). This virtual event attracted nearly 350...Topics: Advocacy/ Awareness/ Patient Voices/ Take Action
Apr 2, 2024
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for patients, is proud to announce this year’s theme for April’s Sarcoidosis Awareness Month: Say Sarcoidosis....Topics: Awareness/ Living with Sarcoidosis/ Take Action
Feb 28, 2024
Are you thinking about participating in a clinical trial? Here are 6 things you should know! Clinical trials can be an intimidating and unexplored area for many people. Some may have been exposed to the basic principles of research methods in school, while others may...Topics: Awareness/ News/ Online Educational Content/ Other/ Research/ Take Action
Feb 13, 2024
The Foundation for Sarcoidosis Research is part of a 27-member coalition dedicated to improving access to supplemental oxygen for all in need. Chasta Posey, FSR Patient Advocate, Patient Navigator, Member of the FSR Women of Color Advisory Committee, and FSR Global...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Patient Voices/ Take Action
Aug 17, 2023
“Everything that the foundation (FSR) is doing is moving the needle forward, and so that makes me very hopeful.” – Jeryl Prescott Gallien, Sarcoidosis Survivor, Champion, and Spokesperson for FSR’s Ignore No More Campaigns. The Foundation for Sarcoidosis...Topics: Awareness/ News/ Take Action
Apr 5, 2023
The Foundation for Sarcoidosis Research (FSR) is proud to launch the Stand Up for Sarc Campaign this April as part of National Sarcoidosis Awareness Month. Sarcoidosis (pronounced SAR-COY-DOE-SIS) is considered a rare, inflammatory disease characterized by the...Topics: Awareness/ Take Action
Mar 16, 2023
Foundation for Sarcoidosis Research (FSR) has been named an Official Charity Partner for the 2023 TCS New York City Marathon, which takes place on Sunday, November 5. FSR will be among more than 550 official charity partners providing thousands of runners the...Topics: Awareness/ News/ Other/ Take Action
Dec 27, 2022
What’s your volunteer style? Do you want to make a difference in sarcoidosis but not sure exactly what role would suit you best? Take the quiz below to answer some fun questions to determine if you would be a better fit as a Community Outreach Leader or Support...Topics: Awareness/ Other/ Take Action
Nov 17, 2022
Darlene Anita Scott is a writer and visual artist living with sarcoidosis. She applied to become an FSR Global Sarcoidosis Clinic Alliance (GSCA) Community Outreach Leader and is dedicated to sharing her sarcoidosis story with the public to raise awareness and help...Topics: Living with Sarcoidosis/ Patient Voices/ Take Action
Oct 25, 2022
[su_quote cite=”Calvin Harris”]“My hope is that this campaign will greatly increase awareness of sarcoidosis and encourage Black patients to participate in clinical trials. That will ultimately improve our lives and benefit everyone in the...Topics: Living with Sarcoidosis/ News/ Other/ Patient Voices/ Research/ Take Action
