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FSR Updates

Stay up-to-date on the Foundation for Sarcoidosis (FSR)'s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.

FSR Reports

FSR has undertaken a comprehensive process to develop a new Research Agenda that will guide its funding priorities and strategic direction. This initiative comes at a critical time, as sarcoidosis affects approximately 1.2 million people worldwide, and approximately 175,000-200,000 in the United States. Sarcoidosis was first discovered over 150 years ago and yet little progress has been made toward a significant breakthrough in the scientific understanding of the disease and the therapeutic options.

To address this concern, FSR has endeavored to create a robust Research Agenda aimed at addressing gaps in sarcoidosis research. This Research Agenda represents a strategic and measurable approach toward the achievement of our mission to accelerate progress toward improved treatments and a possible cure for sarcoidosis.

On October 28, 2024, the Foundation for Sarcoidosis Research hosted the Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting—an interactive, virtual event where patients and caregivers shared their experiences, unmet needs, and treatment priorities.

The resulting 50-page Voice of the Patient Report captures these insights, reflecting the real-world impact of sarcoidosis and guiding future research and therapy development. This report amplifies the voices of patients and caregivers, providing valuable perspective for healthcare providers, researchers, and drug developers to ensure that patient needs remain at the center of progress.

FSR is excited to announce the release of The FSR-SARC Patient Registry Report (FSR Registry Report), “Living with Sarcoidosis – Insights from the FSR-SARC Patient Registry (FSR Registry)."

This global, patient-reported outcomes program incorporates dates from 2015-2025. For a decade, the FSR Registry has gathered crucial information from individuals living with sarcoidosis around the world. This online patient registry is helping researchers uncover patterns in the disease and identify ways to improve care and quality of life.

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FSR Blog

FSR Convenes Global Leaders for Landmark Clinic Alliance Meeting and Sarcoidosis Biomarker Summit

December 5, 2025

The Foundation for Sarcoidosis Research (FSR) brought together more than 40 leading clinicians and researchers from around the world for two landmark events: theLearn More

A Rare Type with a Rare Disease

October 29, 2025

In 1997, after several months of dealing with confusing symptoms, I was diagnosed with sarcoidosis in my lungs and lymph nodes. The surgeon whoLearn More

In Memory of Bob Gross

October 3, 2025

It is with deep sadness that we share the passing of our dear friend and longtime volunteer, Bob Gross. For many years, Bob wasLearn More

FSR Attends WASOG 2025 International Conference

September 1, 2025

Members of the FSR team joined over 300 global experts, clinicians, researchers, and advocates for four days of learning, collaboration, and engagement at theLearn More

FSR Sarc Fighter Podcast Surpasses 100,000 Downloads

July 21, 2025

The Foundation for Sarcoidosis Research (FSR) is proud to celebrate a major milestone for the FSR Sarc Fighter Podcast, which has officially surpassed 100,000 downloadsLearn More

FSR Awards $450,000 to Support Early-Career Investigators Through the 2025 Fellowship Grant

July 16, 2025

The Foundation for Sarcoidosis Research (FSR) is proud to announce the three recipients of the 2025 FSR Early Career Fellowship Grant: William Lippitt, PhD, (UniversityLearn More

FSR and ATS Announce Dr. Mark Mallozzi as the New Partner Grant Awardee

June 6, 2025

The Foundation for Sarcoidosis Research (FSR) and the American Thoracic Society (ATS) are pleased to announce that Mark Mallozzi, MD, MPH has been selectedLearn More

FSR Attends 2025 ATS International Conference

June 2, 2025

In May, the FSR team came together in San Francisco, California for the 2025 American Thoracic Society (ATS) International conference. ATS is one ofLearn More

Coalition to Transform Clinical Trial Engagement Launches “Champions for Change – PTO Initiative

May 20, 2025

In recognition of Clinical Trials Day, the Coalition to Transform Clinical Trial Engagement (CTCTE) proudly announces the launch of the Champions for Change – Paid Time OffLearn More

Foundation for Sarcoidosis Research Expands Board of Directors with New Leaders in 2025

May 9, 2025

The Foundation for Sarcoidosis Research (FSR) is pleased to announce the appointment of four new members to its Board of Directors: John Mockovciak III,Learn More

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