Stay up-to-date on the Foundation for Sarcoidosis (FSR)'s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.
FSR Reports
FSR has undertaken a comprehensive process to develop a new Research Agenda that will guide its funding priorities and strategic direction. This initiative comes at a critical time, as sarcoidosis affects approximately 1.2 million people worldwide, and approximately 175,000-200,000 in the United States. Sarcoidosis was first discovered over 150 years ago and yet little progress has been made toward a significant breakthrough in the scientific understanding of the disease and the therapeutic options.
To address this concern, FSR has endeavored to create a robust Research Agenda aimed at addressing gaps in sarcoidosis research. This Research Agenda represents a strategic and measurable approach toward the achievement of our mission to accelerate progress toward improved treatments and a possible cure for sarcoidosis.
On October 28, 2024, the Foundation for Sarcoidosis Research hosted the Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting—an interactive, virtual event where patients and caregivers shared their experiences, unmet needs, and treatment priorities.
The resulting 50-page Voice of the Patient Report captures these insights, reflecting the real-world impact of sarcoidosis and guiding future research and therapy development. This report amplifies the voices of patients and caregivers, providing valuable perspective for healthcare providers, researchers, and drug developers to ensure that patient needs remain at the center of progress.
FSR is excited to announce the release of The FSR-SARC Patient Registry Report (FSR Registry Report), “Living with Sarcoidosis – Insights from the FSR-SARC Patient Registry (FSR Registry)."
This global, patient-reported outcomes program incorporates dates from 2015-2025. For a decade, the FSR Registry has gathered crucial information from individuals living with sarcoidosis around the world. This online patient registry is helping researchers uncover patterns in the disease and identify ways to improve care and quality of life.
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Skin Sarcoidosis FAQs
Dermatologist and sarcoidosis specialist Misha Rosenbach, MD from University of Pennsylvania kindly offered to answer the dermatological questions from our conference’s Q&A session viaLearn More
Memorial Monday: A Day for Remembering
Each year during Sarcoidosis Awareness Month, we take the time to remember the lives lost too soon to this terrible disease. On this MemorialLearn More
It’s National Volunteer Week – THANK YOU!
It’s National Volunteer Week! We want to take a moment to thank all of the awesome sarc warriors and their loved ones who haveLearn More
Walk of the Week: Lake Charles, LA!
FSR is hosting our fifth annual Team KISS 5K Run/Walk in Atlanta, GA this year. This event helps raise awareness about sarcoidosis while also fundraising forLearn More
One Week Until Team KISS Walk Deadline!
There’s only ONE WEEK LEFT to register for the Team KISS Walk events on April 28th this year! This includes the Official Team KISSLearn More
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